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“The new NHS” What will it mean to people with rare genetic conditions?

This was the question at the annual Genetic Alliance UK conference yesterday.  Genetic AllianceUK is the national charity of patient organisations and has a membership of over 140 charities supporting all those affected by genetic disorders. 

With the significant changes that are being proposed for the NHS the concern is those with rare genetic conditions will be left without the support and services they need.  It has been proposed that responsibility of care will move from the Primary Care Trust (PTC) to GP’s, and the worry is that there are not enough GP’s who have specialist knowledge about these rare conditions to effectively support these patients needs.  Read more

More Money Being Raised for Charity This Weekend

Sunday 17th April 2011 is the date of the 31st London Marathon.  The London Marathon is the largest annual fundraising event on the planet – runners have raised over £500 million for good causes since the race began in 1981.

In these austere times the importance of this level of fundraising cannot be ignored.  There was always the worry that as everyone had to tighten their belts charitable giving would be the first of the cutbacks families would make.   Charities have such an important role to play in our modern society, they pick up the slack from the stretched NHS and offer support and an listening ear to millions of people and animals up and down the country on a daily basis. Read more
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